Part 1: What does it mean to be sick? “You don’t look sick” is a common phrase heard by those of us with “invisible” illnesses. I think it’s often meant as a compliment, but sometimes it is an accusation. There seems to be an expectation that if we’re “sick” there will be some visible sign…
Month: October 2022
Setting Priorities
I took a shower on Friday. It had been 10 days since my last shower. Or maybe it was closer to 14 days. I’m not really sure. I know that probably sounds gross to most of you. I’m lucky that I apparently don’t have strong body odor. Yes, I’ve asked. Since I don’t have a…
Running On Air as a Non-Profit
Today is October 1, 2022 and the start of PCD Awareness month. To me this month is all about raising awareness of PCD and raising money for the PCD Foundation. I’ve been asked why I made Running On Air (ROA) a non-profit and asked questions about if I was still supporting the PCD Foundation, since…
Running On Air 