Walking 26.2 Miles Makes Me a Loser

Someone at my gym was wearing an Under Armour shirt that proclaims: “Losers Walk”. I’m sure this was meant to be motivating. Instead, it is a message of superiority and exclusion. If you can’t run; don’t show up. For those of us who struggle to run, for whatever reason, the message is that we aren’t good…

11 Things You Should Know About Supplemental Oxygen

Breathing.  Its one of the easiest things in the world to do.  Until you can’t.  If you’ve never had to wear supplemental oxygen, there are a few things you probably never thought about people going through just to breathe.  When you can’t breathe, the process to get supplemental oxygen can be difficult and frustrating.  When…

Being Active with a Lung Disease is a “Leisure Activity”

This post is authored by Evans Wilson.  Evans has Pulmonary Fibrosis (PF) and Pulmonary Hypertension (PH). Mary asked me to write an article on my experiences related to oxygen, getting it, not getting it, using it etc. It is notable that I am writing this April 10 after being asked to do so March 17….

Marathon Training Begins – Unofficially

This is my official unofficial announcement that I will be doing my first marathon this year – The New York City marathon. Why is this officially unofficial? Because registration for this race isn’t even open yet. They have a lottery system which opens on January 17. Those selected by lottery will be notified on March…

2016 In Review

This has been another amazing year for me and Running On Air. Not all of the 2016 goals were met, but we came close to some and have a lot to look forward to in 2017. Run the Year Once again I was part of Run the Edge’s Run the Year virtual challenge. I didn’t…

PCD – There’s More to the Story

This post is authored by Renee Dale, a fellow PCDer. Primary Ciliary Dyskinesia (PCD) Awareness Month (October) is a necessary part of helping the PCD community find a cure. But mid-way through the month, every single year, it hits me and hits me hard. I look around and see all this effort by families and friends…

My Chronic Disease (PCD) is a Full Time Job

I have a full time job. Two of them, actually. My first is as a program analyst; I get paid to do it. My second is as Primary Ciliary Dyskinesia (PCD) patient with bronchiectasis. It’s not the kind of job that pays well or has great benefits. In fact, maybe it should be called my anti-job….

Crossing the US – Virtually

Last year when I was entered in Runner’s World’s cover contest, the PCD Foundation was sharing and saying that I was running across the United States to raise awareness. While that was technically correct, I let them know there was a difference in language to us runners. At some point since I started doing races…

It’s a Team Event – And We Need You

The first step to solving a problem is to identify it which has been an issue for those of us with lung and rare diseases. As a means of increasing awareness, I began entering races. I need to wear a portable oxygen concentrator because of my limited lung capacity. Last year, the magazine Runner’s World…

Who Needs Sleep

In one week, I’ll be standing in a corral (most likely the last one) in a parking lot at Epcot Center getting ready to race 3.1 miles. I will have been awake for three or more hours and probably walked at least a mile already. And then I’m going to do it again (but earlier and 6.2…

Feel the Love by Running The Year 2016

My blog on January 24th was titled “Why You Should Run (or Walk) The Year 2016.” I wrote about why you should consider signing up to join Run The Edge’s online group and gave you great concreate reasons. So why I am I writing about Run The Year 2016 again so soon? Because if you…

The Importance of Exercise

There are many studies that state the benefits of regular exercise. And recently it was announced that movement throughout the day is important. Exercise helps keep our hearts strong and increases our muscle mass. It helps us think more clearly and breathe more deeply. Any kind of cardiovascular exercise can become an issue for those…