Last year when I was entered in Runner’s World’s cover contest, the PCD Foundation was sharing and saying that I was running across the United States to raise awareness. While that was technically correct, I let them know there was a difference in language to us runners. At some point since I started doing races…

The first step to solving a problem is to identify it which has been an issue for those of us with lung and rare diseases. As a means of increasing awareness, I began entering races. I need to wear a portable oxygen concentrator because of my limited lung capacity. Last year, the magazine Runner’s World…